Proceeds
We
have donated to the following causes:
Phenylketonuria
(PKU) Research, Yorkhill Hospital.
PKU is a genetic
disorder which affects 1 in every 10,000 babies
born in the UK each year.
Treatment consists of a strict low
protein diet and daily medication, controlled by
regular blood samples sent to hospitals for
analysis. Before
dietary management, children born with PKU
became severely mentally handicapped. The
future of PKU Research at Yorkhill is uncertain
at present, so most funds raised will go to
other charities this year.
Forth Valley
Disability Sports
This
is dedicated to providing sporting opportunities
for people with disabilities throughout the
Forth Valley area. As a charitable
organisation FVDS look to seek funding to allow
athletes to compete at a local, national and
even international, including the Special
Olympics.
Strathcarron
Hospice
Strathcarron
are committed to the provision of specialist
palliative care to patients with active progressive
illness and the support of their families. Care
is provided free and referrals to the hospice
come from general practitioners and hospital
consultants in Forth Valley, Cumbernauld and
Kilsyth.
SSC
(www.thessc.org)
SSC allows young people
who would not otherwise be able to enjoy a
holiday to attend events which provide the
opportunity to meet new friends, enjoy the
outdoor life and have fun in an atmosphere of
trust and tolerance.
Trossachs Search
and Rescue Team (www.trossachssar.ik.com)
TSART provide
assistance to persons who become lost and to
persons and animals in distress or injured.
This is achieved though the provision of a
voluntary search and rescue service staffed by
24 members and 5 search dogs. One of the
teams dogs, Meg, was named the "Bravest dog
in Britain" when she won the Animal Health
Trust Bravery Award. They also promote
outdoor safety training to the public and
provide first aid training. The service
receives no government funding and funded
entirely through charity contributions.
However, the amounts raised has decreased over
recent years, as the charity find they can't
compete against big charities.
Downs Syndrome
Scotland Association (www.dsscotland.org.uk)
DSScotland are running an
Adult Participation project where the objective
is to help adults with Down's Syndrome (DS)
develop new skills and to increase their
self-confidence. Part of this project is
the production by the participants themselves of
"Speak Up", a magazine aimed at their
own peer group. The magazine is produced
twice per year and is supported by roadshows in
Aberdeen, Perth, Glasgow and Inverness which
invite people along with DS in the respective
area. Current funding is almost exhausted
for this project and The Grand Boys hope to aid
the association in continuing this important
area of work. |
What
is PKU?
Phenylketonuria
is a very rare genetic disorder which affects 1 in
every 10,000 babies born in the UK each year. Treatment
consists of a strict low protein diet and daily medication,
controlled by regular blood samples sent to the hospital
for analysis. This diet prevents the eating of normal
foods that are high in protein, ie. meat, fish, poultry,
eggs, cheese, bread, milk, etc. These foods must be
replaced with low protein foods prescribed by the
doctor. Before dietary management, children born with
PKU became severely mentally handicapped.
Research is currently being carried
out in Scotland based at Yorkhill Hospital, Glasgow,
Scotland. Over the past few years major progress has
been made in understanding more about PKU and the
improvement of diet.More information is available
at the UK Charity NSPKU
web site.or The
National PKU News in the USA
Send
mail to John Griffin at grandboys@hotmail.co.uk
with questions or comments about this web site.
Last modified: 1st Dec 2007
